European Networks dedicated to rare diseases
ERNs are European reference networks bringing together expert hospitals across Europe, to improve patient care through the setting up of a virtual clinic. SENSGENE is active in ERN-EYE and ERN CRANIO.
The European reference network ERN-EYE
ERN-EYE is a network dedicated to rare diseases of the eye, the leading cause of visual impairment and blindness in children and young adults in Europe.
The main objective of the network is the development of a platform (virtual clinic) to promote cross-border dissemination of expertise.
NETWORK COORDINATOR:
Professeur Hélène Dollfus
Hôpitaux Universitaires de Strasbourg,
1 place de l'Hôpital
67000 Strasbourg
France
European Reference Network ERN Cranio
ERN Cranio is the European Reference Network for Craniofacial Anomalies and ENT disorders.
ERN CRANIO involves teams from 29 European hospitals from 11 Member States. Many European patients, particularly children, do not have access to the required care for their rare craniofacial anomaly and related disorders. To counteract this inequality ERN CRANIO focuses on facilitating professionals throughout Europe to share gained knowledge on rare craniofacial anomalies and ENT disorders.
NETWORK COORDONNATOR :
Erasmus MC
Prof. Irene Mathijssen
Waterplein 40
3015 GD Rotterdam
The Netherlands
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