Deafness is the most common sensory deficit; it affects 1 in 1000 children at birth, 1 in 700 children before adulthood and a large percentage of the adult population. Deafness is therefore not rare, but it includes a large group of rare diseases of genetic origin. It is currently estimated that 80% of childhood deafness has a genetic origin. The genetic share of deafness appearing in adulthood remains to be determined but is likely to be significant. More than 100 different genetic forms are currently identified in isolated deafnesses and more than 500 different syndromes including deafness have already been described.
There are expert centres in France for genetic deafness :Genetic deafness logo
3 reference centres :
20 centres of expertise spread throughout metropolitan France and Reunion Island are also attached to them.
HandiConnect has published 7 tip sheets on hearing disability to guide healthcare professionals in their daily practice with deaf or hearing-impaired patients.
RogerVoice facilitates conversations for the deaf and hearing-impaired people and opens up a world of possibilities.
Le 114 est un numéro d’appel d’urgence pour les personnes sourdes et malentendantes. Ce numéro unique, national, gratuit est accessible par visiophonie, tchat, SMS ou fax, 24H/24, 7J/7.
Surdi Info is a service for both parents who learn that their child is deaf or hearing-impaired and people who discover that they are losing their hearing.
The Fondation Pour l'Audition aims to unite talents to advance the cause of hearing and help deaf and hearing-impaired people to live better every day.
French Association for the Promotion and Development of the Cued Speech.
For all people, implanted or not, who are interested in this surgical technique which has revolutionised the lives of people who are deaf or hearing-impaired.
Le CRESAM, Centre National de Ressources Handicaps Rares – Surdicécité a pour vocation de venir en aide à toute personne présentant une double déficience sensorielle, visuelle et auditive, sur le territoire français.
La Fédération Nationale des Sourds de France, reconnue d’utilité publique en 1982, rassemble plus de 80 associations membres adhérents et de 5 000 membres.
La SFSLS est composée de professionnels de la santé sourds et entendants, communiquant en LSF (Intermédiateurs, interprètes, secrétaires, IDE, médecins, psychologues, assistantes sociales, etc. ) et travaillant dans les secteurs public et privé.